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Showing posts from August, 2017

I am not my diagnosis

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No one goes out like this--certainly not us We have to admit that one of our professors gave the idea for this week’s post.   Let’s be honest here, no one walks around holding giant signs with their conditions listed.   Your diagnosis is not your label.   The question is why do some people believe that it is.   The answers to that are endless, but basically some people are just awful.   Why must our diagnosis be the only thing that we are?   Why can’t we be known as something that is positive?   We are both daughters, sisters, students and so much more than our diagnoses.   We love watching random movies and TV shows.   We love to relax and go out with friends.   Though we might not be able to do absolutely everything, we still try.   There are days where we just need to take a break, and others where we can act fairly normal.   We do not go out where we go and start giving out our diagnoses.   If necessary, or if we feel like it we might say something, but we don’t introduce

College Survival Tip #3 Back to School

First, we would like to apologize/acknowledge our absence over summer.  Simply put, our summers were full of hospitalizations, appointments, medication changes, vacations, and more.  Now, with colleges starting back up again I (Tremors) decided that it was time for another survival tip: how to survive the back to school rush. Back to school is something that everyone dreads in some way, shape, or form.  It means the end of the freedom of summer time, and back to the grind at school.  Which is frankly isn't something I look forward to since I really like relaxing over summer.  When you go back to school as a spoonie there is a lot that you have to do.  You need to make sure you have your housing set, that you have your accommodations in place, you need to talk to your professors, and you have to get your body use to a new schedule.  None of this is something that people truly enjoy doing. To survive back to school as a spoonie: 1.) Do not try to do everything all at once: Don&