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Showing posts from December, 2016

UPDATES!

We want The Medical Dorm to be able to help those around us.  We want to help raise awareness and help individuals understand life with a chronic illness.  We also want to be able to help those in our shoes (AKA college students) be able to follow their dreams and achieve their goals.  We decided to make a new section of our blog filled with various college survival tips.  These posts will hopefully be able to inform people with and without chronic illnesses ways to navigate college life.  Ranging from talking to professors to living on campus and everything else inbetween.  Within the next few weeks we are also hoping to join the group Chronic Illness Bloggers.  If you are new to the blog thanks for visiting us and if you have been here before thanks for sticking with us! WE BELIEVE IN YOU! -Nemo and Tremors

Fears (AKA Needles)

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There are always fears in the chronic illness world.  There is the fear that you won’t be diagnosed.  The fear that the treatment won’t work.  Or, the fear that there is nothing more that can be done.  Everyone has fears, and at times you have to face them.  Today, we are talking about a fear that many people have, not just those with chronic illnesses.  Needles.  I mean, needles aren’t great.  They poke and when you are in the hospital there are always needles at the ready.  We are sharing our two stories about how our fear of needles has grown and changed.   Tremors: When I was little I HATED needles with a passion.  I hated getting vaccinations, and would dread the appointments.  Now, all of that has changed somewhat.  I have been told by a number of people that I am too comfortable around needles now.  I started having injections in the back of my head once a month for alopecia around six years ago.  At first, I hated going and would spend the whole ride home about to cry.

I'm Getting a Service Dog

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Over this past year, my life has had a lot of changes in it. Walking has become increasingly difficult. In fact today I went to a doctors appointment where the doctor said that either I would have to walk with a dislocated hip or a hip contracture. There is nothing that the doctors can do anymore. For the most part, I will continue to loose my ability to walk until I am wheelchair bound or mostly wheelchair bound. Similarly I was diagnosed with a condition where the treatment would give me heart failure. This is difficult because this condition makes it very hard to walk, or even stand up. Either I can treat one condition and most likely damage my heart, or I can protect my heart and deal with having to be mostly sedentary. Clearly, there is no option that is good at the current moment. The reason that I am writing about this is not to talk about how my medical conditions are making my life difficult, but instead it is to talk about new hope. This weekend I was able to go and train

Check Out Our First Video!

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When a Girl Loses her Hair

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Tremors here today.  No one ever thinks that they will lose their hair.  Hair loss is seen as a laughing matter, and those who are experiencing hair loss (usually old, fat men) are made fun of for not having a full head of hair.  I (Tremors) started losing my hair in middle school.  One day I woke up and found out that I had two bald spots on the back of my head.  I was then diagnosed with alopecia.  Alopecia is a common autoimmune disease that causes hair loss that can range from just the scalp, to the entire body.  Later, I found out that my alopecia was related to my Satoyoshi Syndrome (We found this out when I was in high school).  Each bald spot on my scalp was around the size of a quarter more or less.  From there, my hair loss changed and the bald spots would create different patterns on my head.  I tried all different treatments to try to keep my remaining hair, and grow back what I lost.  My head was burned, poked and prodded.  Eventually I decided that I had enough, and acce